March 9, 2016

Hospitals are funny places aren’t they? Such a mish-mash of people. I’ve spent quite a significant proportion of my day today (I’m writing this on Tuesday in, you guessed it, the hospital waiting room) at the hospital. Not entirely pregnancy-related and not all for matters pertaining to myself (which I won’t go into, because it’s not my business to share) but it has reminded me again how great the NHS is (even though my consultant is delayed) and what a huge cross-section of the community it serves.

I quite like our hospital. MiL commented to me recently that she thinks she doesn’t like hospitals because people always seem to come out more unwell than when they went in. But that hasn’t been my experience. Growing up my mum was in and out of hospital and had a number of large operations (most notably a kidney transplant when I was seven) but she always instilled in me that the doctors know what they’re doing and will make her better. And fortunately, thus far, she’s been right. She celebrates 25 years post-transplant this May. To say we are grateful to her donor would be a massive understatement.

I’m waiting now for an appointment with my kidney consultant. I have an annual appointment with him to check my kidneys are still functioning well (I’ve mentioned here before that I have ADPKD) and this time I want to know how (or if) the pregnancy and birth will impact on my kidneys.

I already know that I’m at a higher risk of pre-eclampsia because of my kidney disease and I take a (small) aspirin daily to try to prevent this and help the blood flow through the placenta. I’m under the impression that pregnancy could potentially speed up the development of the cyst growth on my kidneys and I’ve also heard about a new drug so I’ll be asking about that. I’ll update this post when I have the answers.

Update: I’m not leaking any protein in my urine (a very good sign that my kidneys are performing as they should be) and the consultant said that while there is a risk of pre-eclampsia, I’m at the low risk end of being a high risk patient, if that makes sense. So all good news.

Interestingly, while I had been led to believe by obstetrics that they would be able to detect cysts on the baby’s kidneys via ultrasound scan, the consultant told me that this is not the case, and would instead be determined via genetic testing, if I so wished. This is in line with what I knew previously about ADPKD, which is that cysts sometimes don’t become apparent until a patient is in their twenties. Whether we decide to go ahead with the testing is another matter. All food for thought.

What’s your view on genetic testing? Would you want to know?

hospitals, ADPKD, ADPKD pregnancy, polycystic kidney disease, polycystic kidney disease pregnancy

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10 responses to “Hospitals”

  1. Bread says:

    The NHS is a wonderful, wonderful thing. My wife is American and always amazing by the amount of care she gets here, especially now she’s pregnant.

  2. The nhs is the best and I don’t think it gets the recognition it deserves sometimes. I am glad all is ok so far for you and with regards to the test I think I would want to know personally that’s how I am #KCACOLS

    • Jules says:

      Thanks. I am constantly arguing with my hubby over the NHS as he believes all the Tory spin. Makes me so cross! x

  3. That’s a very good question about genetic testing. I think I would probably want to know, especially if it was something that could be treated or managed, but if it wasn’t….that’s a bit more difficult. Glad to hear you are doing well so far, and best of luck with the rest of your pregnancy. #KCACOLS

    • Jules says:

      Thanks for your comment. Exactly, if it were something that could be sorted out in childhood I wouldn’t hesitate, but as it’s not, it’s a different matter. I suppose we can ask to have the test whenever we choose so it’s not as though there’s a time limit on the decision.

  4. The Pramshed says:

    An interesting post, and it’s great to hear that your MIL is doing so well. The NHS I’d wonderful, I hope that you get the care for the rest if your pregnancy. I would probably want to know, depending on what the procedure is, should any treatment become available you will then be in the best place with the right information. Claire X #KCACOLS

  5. Brilliant news you are on the low end of high risk 🙂 that sounds weird but you know what I mean. Its also nice to have things you know confirmed. I am not sure about genetic testing we have a similar decision to make about Monkey and whether he has contracted this sticky blood disorder. We have decided to get through the pregnancy get me treated properly and under a haematologist and then consider Monkey’s options. Being a boy I believe he is less at risk and he’s still young from research it only seems to become a problem as you get older, but then a blood clot is a blood clot no matter the age. Glad the pregnancy is going well, look forward to another update 🙂 thank you for joining us at #BloggerClubUK hope to see you again this week x

    • Jules says:

      I think if there is a treatment then go for it. We’re in the situation where PKD doesn’t have a treatment until end stage renal failure so there’s nothing much to be done either way. Not a decision we have to make yet though. Hope all is still going well with your pregnancy x

  6. I also think that the NHS is amazing. I have never had a problem with them. When come from another country where everything works just through the private sector and it is incredibly expensive and you don’t trust the state hospitals, you will definitely appreciate the NHS here and realised how grate they are. Good news that you are in the low risk. Hope things keeping going in that direction. Regarding the genetic test I’m all up for it. I had to do one. I was really scare but it was all good at the end so I think it was worth it. Good luck with your pregnancy. Thanks so much for sharing this at #KCACOLS. I would love to see you again on Sunday! 🙂 x

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